But Seriously: The Cancer Podcast
Carole Motycka - Survivor of Stage IV Colorectal Cancer & Living Donor Liver Transplant Recipient

Carole Motycka - Survivor of Stage IV Colorectal Cancer & Living Donor Liver Transplant Recipient

April 9, 2021

Carole is the mother of four sons and she currently resides in Connecticut with her life partner Michael. She is a co-founder of BLUEM, a Colorectal Cancer patient access space, she’s an Ambassador with Fight CRC as well as The Global Colon Cancer Association, she’s a survivor model for The Colon Club, and her story and advocacy work have been published in many local, regional and national media outlets

 

Carole has been cancer-free for three years.

 

0:00:00 How the cancer was found

0:10:20 Prognosis

0:19:15 Hepatic Artery Infusion Pump

0:28:20 Liver Aneurism

0:35:46 Liver donor 

0:45:30 Liver transplant

0:50:30 Multiple birthdays

1:03:20 Colorectal Screening

1:11:08 Tertiary Care Units

1:20:00 My_Bluem

1:24:00 Fully ALIVE with cancer!

 

- recorded 3/19/2021

Lauren Tarpley - Survivor of Stage 2 Her2+ Breast Cancer (grade 3)

Lauren Tarpley - Survivor of Stage 2 Her2+ Breast Cancer (grade 3)

March 19, 2021

As soon as I greeted Lauren, she hit the ground running and I spent the rest of the podcast just trying to keep up with her. She does not wait for life to happen.

 

Her podcast "Life with Little Ones" is a place for parents to learn about other kinds of families. How to raise more inclusive children and how we all cope with parenting in this pandemic and these times. All kinds of families. Same sex, interracial, interfaith. Conscious coupling or intentionally single parents. 

 

Follow on Instagram @blended_kidz & @lifewithlittleones.podcast

 

Lauren is currently in the midst of treatment and as of March 2, 2021 she is cancer-free.

 

0:00:00 Getting the phone call

0:08:15 Systematic racism in medicine 

0:21:40 How you relate to your doctor

0:24:35 Diagnostics & imaging

0:35:10 Lack of genetic testing data for African-Americans

0:43:00 Chemotherapy 

0:47:40 AYA (Adolescent & Young Adult)

0:52:45 Receiving diagnosis

0:58:30 Cancer screening & recurrence rate

1:10:00 MRI scans

1:13:00 Origin of cancer

1:18:10 Caner day to day

1:30:40 BRCA gene mutation test

1:40:00 Progressing thru and after treatment

1:47:00 Others not showing up

 

- recorded 01/22/2021

Casey Kang Head - 3x Survivor of Acute Lymphoblastic Leukemia

Casey Kang Head - 3x Survivor of Acute Lymphoblastic Leukemia

March 12, 2021

Casey’s journey just floored me with what she had to endure and I was deeply moved by the love and presence demanded of her and her family by this seemingly unending diagnosis.

 

Casey is the author of “Finding Your Way Back to Heart Center; cancer treatment ended now what?”

 

She’s a cancer survivorship coach: helping women thrive post-treatment, stronger physically mentally & emotionally through her program: A Happier Healthier You. She’s also personal trainer and a cancer exercise specialist. Casey is based out of Chicago and she is a dog mom to a Maltipoo named Lily.

 

Casey ’s been cancer free for 3 1/2 years.

 

Instagram @TheHappierHustle

Website TheHappierHustle.com 

Facebook Group “Thriving After Cancer Treatment.”

 

0:00:00 How the cancer was found

0:10:15 Adult with pediatric cancer

0:22:00 Petechiae and bruising

0:32:48 Extracting the bone marrow

0:42:45 Get walking!

0:54:08 IT Chemo infusions

1:01:52 Rehab hospital 

1:09:13 All that we take for granted

1:18:55 Chemo-brain

1:25:05 Two years of treatment and then a recurrence

1:30:55 Fever 105°F

1:39:40 Sitting in the uncomfortableness

1:52:10 Twenty more good years

1:57:12 Stem cell treatment 

2:14:30 Third recurrence

 

- recorded 04/04/2020

Laura Steenburgh - Survivor of Ductal Carcinoma in situ (DCIS)

Laura Steenburgh - Survivor of Ductal Carcinoma in situ (DCIS)

March 4, 2021

Laura is a wife, a mother, a dog owner, a nonprofit development consultant, and a dedicated do-it-your-self-er who loves to spend time with her family, travel, stay up late and sleep in.

 

What really stood out to me in this conversation with Laura is how meticulously she researched every aspect of her treatment options, from her physicians and their treatment recommendations, to her fellow patients as far as what they were glad they and what they wish they had done differently.

 

Laura has ben cancer-free for ten years.

 

0:00:00 How the cancer was found
0:15:00 Making your needs clear
00:27:43 Additional opinions
00:34:30 Breast reconstruction
00:45:06 Interviewing your doctor
0:57:20 Side effects
1:04:45 Feeling at home in our bodies
1:10:46 Others noticing our altered bodies
1:15:10 Sharing our experience with others
1:25:30 Choosing a direction
1:29:20 Cancer and being a parent
1:36:25 Lifting each other up
1:40:20 Our unique responses to treatment and procedures
1:47:00 Cancer screening

 

-recorded April 24, 2020

Alexandra Bessent - Survivor of Triple Positive Breast Cancer

Alexandra Bessent - Survivor of Triple Positive Breast Cancer

February 18, 2021

Alexandra is a video producer who lives with her family and two dogs in Baltimore. She likes to spend time in the kitchen coming up with new dinner ideas, but someone else will have to make dessert! She also likes to paint and is frequently in search of a creative outlet.

 

Alexandra has been Cancer-free two years.

 

0:00:00 How the cancer was discovered
0:07:12 Telling her children
0:11:15 Your relationship with your caretakers
0:17:39 Listing her hair
0:26:05 Those who showed up
0:35:20 The unremarkable end to treatment
0:41:25 Frozen vegetables on her feet
0:49:12 Treatment decisions
0:55:15 Bilateral mastectomy
1:05:20 Post-treatment check ups

- recorded 4/21/2020

Lee Ginenthal - Survivor of Prostate Cancer

Lee Ginenthal - Survivor of Prostate Cancer

January 28, 2021

Lee is a retired school teacher, a volunteer and mentor at the Cancer Resource Center of the Finger Lakes for men with prostate cancer. He’s a personal trainer and uses old school/unconventional strength and mobility training, he’s the owner of Der Rosenmeister Nursery, an antique and modern rose nursery, and he lectures widely throughout the Northeast on sustainable rose growing practices. He is married and has two grown children and a grandson.

 

0:00:00 How the cancer was found
0:09:00 Treatment options
0:13:35 Biopsy
0:17:00 Pelvic Floor Physical Therapy
0:24:55 Penial Rehabilitation
0:32:44 “Frank Talks”
0:37:17 All in nine weeks
0:42:10 Finding support
0:46:28 Caregiver support
0:54:13 Erectile Dysfunction
1:01:15 Urination recovery
1:04:15 Seeing the insides of our bodies
1:11:30 Making the treatment decision
1:19:40 Adult Undergarments
1:26:00 Body image and hiding

 

- recorded September 23, 2020

Mandi Chambless - Survivor of Stage IIIc Ovarian Cancer

Mandi Chambless - Survivor of Stage IIIc Ovarian Cancer

January 21, 2021

Mandi lives in the Austin, Texas area with her husband and their three dogs. She is an artist and a writer with a great love of the outdoors. Mandi has been cancer-free for almost twelve years.

 

0:00:00 Surprise diagnosis

0:05:00 Treatment

0:15:31 “How can we mourn the thing we didn’t even want in the first place?”

0:19:00 Being the reason everyone around you is trying not to cry

25:54 Spouses addiction

0:28:57 Overhearing her diagnosis 

0:34:25 Healing in transparency

0:43:30 Patient guilt

0:53:05 Forgiveness

0:59:04 Supporting other survivors

1:10:15 The benefits of writing

1:21:08 Simply Do and Be

1:29:00 Post-treatment followups

1:39:35 Treatment for the treatment 

1:47:09 Having an incurable disease

https://www.facebook.com/mandi.chambless

 

- recorded October 21, 2020

Maria Brown - Survivor of Non-Invasive Ductal Carcinoma & Invasive Stage I Breast Cancer

Maria Brown - Survivor of Non-Invasive Ductal Carcinoma & Invasive Stage I Breast Cancer

January 8, 2021

Maria is a geriatric social worker and an academic researcher, a sister and an Auntie, who lives with her wife and their dog in Upstate New York. She is also a founder and moderator of the Facebook group for Lesbian Cancer Survivors and Caregivers, which she started in 2007 during her second breast cancer, when she realized that lesbians were invisible in the existing literature and resources for women with breast and other cancers.

 

Maria has been cancer-free for twelve years.

 

[timestamps will be released soon]

 

- recorded April 21, 2020

Louise Holmes - Survivor of Pseudomyxoma Peritonei (Appendix Cancer)

Louise Holmes - Survivor of Pseudomyxoma Peritonei (Appendix Cancer)

December 31, 2020

Louise is an artist, administrator and writer from Norwich in the UK. She was originally diagnosed with a rare form of appendix cancer in 2014 and again in 2017. She is currently recovering from her second surgery.

 

0:00:00 How the cancer was discovered

0:05:19 Louise lands at Basingstoke Hospital

0:10:12 Treatment: Pseudomyxoma peritonei (PMP) & hyperthermic intraperitoneal chemotherapy (HIPEC)

0:14:15 The immediate impact on Louise and her loved ones

0:20:21 Urgency for treatment

0:25:05 Time to let it all in

0:32:19 Cancer awareness 

0:40:58 Cancer clichés

0:45:30 Mindset going into surgery

0:50:30 Chemo baths

1:02:50 Finding your way back up

1:08:48 Long-term effects of treatment

1:22:00 How the body communicates with us

1:26:50 Your reality anchor

1:35:41 Removal of the mucinous carcinoma

1:39:40 The power of laughter 

1:41:09 Supporting those grieving our diagnosis

1:48:22 The mother of all surgeries

1:52:52 Caregivers

2:01:25 Calling doctors by their first name

2:08:05 Followup scan

2:17:40 Life “extending” surgery

2:22:05 We are not our bodies

2:28:00 Living the only life we have

 

www.PseudomyxomaSurvivor.org

https://mypmpexperience.wordpress.com

 

- recorded October 2, 2020

Laya Ballesteros (Part Two) - Survivor of Stage II ER PR+ Her2- Breast Cancer

Laya Ballesteros (Part Two) - Survivor of Stage II ER PR+ Her2- Breast Cancer

December 18, 2020

This is part two of the Laya Ballesteros podcast. Laya is an elementary school art teacher who is passionate about working with our youngest artists and she herself is a mixed media artist. Laya has been cancer-free for three years.

0:00:00 Going into surgery

0:12:57 Post-surgery recovery

0:25:00 Long-term recovery

0:37:54 Chemotherapy

0:47:25 Allergic reaction to chemo

0:56:35 The impact on our relationships

1:13:50 Managing chemo side effects

1:24:57 Life after cancer

 

- recorded April 8, 2020

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